What is CVI?
CVI is a brain-based visual impairment caused by damage to the visual pathways or visual processing areas of the brain.
“With CVI, the brain has difficulty converting the raw data from the eye into a reliable, meaningful image of the world that can be interpreted and acted upon.”
Matt Tietjen, CTVI and leader in the field
How does this affect Moira and her ability to see and learn?
The simple answer is that we don’t fully know yet. What we do know is that the brain is incredible and when treatment and therapy is started early, individuals with CVI can learn to process what they see in their own way. Every person living with CVI has a unique experience, and individuals will progress and adapt differently. There are many examples you can look up online showing what sight may look like for someone with CVI, but given it is caused by how the brain processes what the eyes are taking in we really don’t know for sure.
One of the key strategies we are currently using is Red and Infrared Light Laser Therapy at NeuroSolution Center of Austin. This is also known as photobiomodulation. After just our first session with them, we noticed Moira making more eye contact with us later that day!
Moira was also rescored recently by her TVI (teacher of the visually impaired) who had scored her 5 (middle of Phase II in March) and in September, she scored a 7-8 (transitioning between Phase II and Phase III). Moira’s TVI did mention this was the fastest progress she has personally ever seen in her 13+ years being a TVI. I truly feel this is in huge part to the therapy mentioned above.
RESOURCES
Links
Dr. Christine Roman - This site has a wealth of information from Getting a Diagnosis, 10 Characteristics, CVI Range & Assessment, CVI Services, Roman on CVI, and more.
Perkins School for the Blind - What is CVI?
Perkins School for the Blind - How is CVI Diagnosed?
Paths to Literacy - CVI and Literacy
Little Bear Sees - What is Cortical Vision Impairment?
Lighthouse Guild - Cortical Vision Impairment (CVI)
American Printing House for the Blind - What is CVI?
Wonder Baby - Top 8 Misconceptions about CVI
Books:
Little Bear Sees - lowest barrier to entry
Cortical Visual Impairment: An Approach to Assessment & Intervention
Cortical Visual Impairment Advanced Principles
Sensory Balance: An Approach to Learning Media Planning for Students with CVI
Vision and the Brain: Understanding Cerebral Visual Impairment in Children