About Moira
Moira Jean was born September 16, 2021. We knew there were some things that would need to be addressed once she was born, but we didn’t know we would be separated in different hospitals night one, spend 43 days in the NICU, and have to get a feeding tube to help her eat.
MORE UPDATES COMING SOON
Learn about KAT6B
KAT6B is a rare genetic syndrome resulting from a mutation in the KAT6B gene.
Learn about CVI
With CVI, the brain has difficulty converting the raw data from the eye into a reliable, meaningful image of the world that can be interpreted and acted upon.
Moira’s Favorites
A list and links to Moira’s favorite toys and mom’s favorite items to help with Moira.